Social media influencer Hannah Campbell is grieving the loss of her 10-month-old daughter, Elliana Rose, who passed away on Monday following a difficult battle with a rare and life-threatening skin disorder.
Elliana was diagnosed with Junctional Epidermolysis Bullosa (JEB), a severe form of a genetic condition that causes the skin to blister and tear with the slightest friction. The heartbreaking news was shared by Campbell in an emotional message to her 720,000 TikTok followers.
“Our sweet girl Elliana Rose lost her battle last night. She passed peacefully, wrapped in love,” Campbell wrote. “I don’t know what to do with myself today. I’m heartbroken, and I’m angry. No child should have to endure what she did.”
She went on to express frustration at the lack of a cure for the devastating condition. “EB stole her from us. Let’s fight for a cure so no other family has to feel this. Thank you for loving her with us,” she added.
Elliana was only two weeks old when she was diagnosed with the rare disease. From that moment on, Campbell began sharing her daughter’s medical journey online, hoping to raise awareness and build a supportive community.
In a TikTok video posted earlier this year, Campbell and her husband reflected on receiving their daughter’s diagnosis. “It was heartbreaking,” she said. “It was really sad to hear that she probably won’t live past her first year of life.”
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Throughout Elliana’s short life, Campbell used her platform to educate others about Epidermolysis Bullosa (EB), explaining the different forms and the level of care required to manage the disease. She often detailed the relentless routine of medical treatments and the delicate care Elliana needed around the clock.
Just days before her daughter’s passing, Campbell posted a sorrowful update revealing that Elliana’s condition had worsened significantly. “She hasn’t opened her eyes, eaten, and can hardly cry,” she wrote. “We’re holding her close and loving her through every breath. Please keep her in your heart.”
Epidermolysis Bullosa is a rare inherited condition that typically appears early in life, often in infancy. According to the Mayo Clinic, symptoms can range in severity, but some forms, like JEB, are especially serious and can be fatal. The disease can affect both the skin and internal linings, including the mouth and digestive system, making everyday life extremely painful.
Despite there being no cure for EB, families like the Campbells continue to raise awareness and advocate for more research in hopes of one day finding a treatment that could save lives.
Hannah Campbell, who also has an older daughter, has received an outpouring of support from followers and fellow parents across social media.
